/ Health

NHS funding is a postcode lottery – have you been affected?

Patients around the UK are facing a postcode lottery when it comes to continuing care on the NHS, our health investigators uncovered today. Have you been affected by the NHS postcode lottery like Gill and Carol?

Gill Jarvis was shocked to find herself footing a £96k per year care home bill at short notice. Her mum Jean – who has severe dementia – had lived in her care home for nine years and the NHS had been paying her care bills but all that suddenly stopped with little explanation when Jean’s local health board (Clinical Commissioning Group) reviewed her needs.

In another part of the country, Carol Rumens found herself in a similar situation when her husband Geoffrey’s continuing healthcare funding was stopped after eight years. Geoffrey has long-standing mental health problems and is physically very disabled and unable to care for himself.

Both Gill and Carol are clear that the person they love’s health has deteriorated, making the withdrawal of this funding even more hard to understand, and they’re not alone in feeling that they are victims of a continuing healthcare postcode lottery.

Care costs

The NHS funds people who have the highest healthcare needs. Those assessed and deemed eligible have their full healthcare costs funded by the NHS – whether they live in their own home or in a care home, and whatever their financial situation. At a possible £1,000 plus a week, it’s a life-changing sum of money.

But despite a national framework for assessments, vulnerable people with complex conditions can be up to 25 times more likely to get their care costs covered depending on where they live, according to NHS continuing healthcare funding data.

South Reading, the Clinical Commissioning Group (CCG) area with the lowest level of people funded, paid care costs for 8.78 patients per 50K of the population, while Salford funded 220.38 people per 50K. Although different areas have different populations, these differences can’t be easily explained by demographic differences.

The inconsistencies affect people living in the same region too. In Stockport (31.76 per 50K), patients are almost seven times less likely to get the funding than those 10 miles away in Salford.

Emotional impact

And it’s not just the funding that hits hard. Carol – herself an ex-nurse and health visitor – describes the emotional impact of fighting her husband’s case for funding. She said:

“This has nearly broken me. I go to meetings but it’s a foregone conclusion. This is not justice. CHC is meant to be based on need but his need has got worse. They ask my opinion but it’s not of interest to them even though I’m the one who knows him, and what triggers his mental health, best.”

A new national framework has now been published with implementation due on 1 October 2018. It will not change eligibility criteria, but aims to provide greater clarity, including for staff. But will it make the changes that are needed?

Comments
Guest
Arthur Hall says:
21 April 2018

If there is to be any distinction with NHS services it should not be by postcode, but by the patient’s contributions to the scheme. How can we have reached a situation where UK citizens who, like their parents, have contributed all their working lives, are in need of care or medical services. Is it any wonder that the NHS staggers from one crisis to the next, or that our elderly are often cared for at the expense of the homes they have worked for all their lives?

[Sorry, your comment has been edited to align with our community guidelines. We do not allow comments which others may find offensive. https://conversation.which.co.uk/commenting-guidelines/. Thanks, mods.]

Guest
Derek farman says:
21 April 2018

The post code lottery is actually a crime. We need a government who listens to our concerns and does something about it.
Where is that government ?

Guest

Derek-Non existent when it comes to the care of its own citizens delegating its responsibilities into the hands of hard-nosed business people where profit comes first and the poor are left to die. We don’t have a government , we have a City run Big Business conglomerate operating for the benefit of foreign countries and doing its best to introduce every USA policy into this country for profit .

Guest

At least Donald is honest and admitted the US government is run as a business , the days of “the Mother of Parliaments ” has been fully corrupted by political dogma and off shore entities . The truth is always unacceptable to those not willing to accept it.

Guest

I love that sentence “The truth is always unacceptable to those not willing to accept it“. The trouble with Trump is that he struggles with the truth most of the time and we have difficulty recognising it when he occasionally comes up with it.

Incidentally, why do we say “Donald” but not “Vladimir” when referring to the respective big beasts? My mind turns to water fowl when I hear the word Donald, and if it quacks, waddles and continuously preens itself I guess I am right.

Guest

Because Putin is not roaming round the world invading countries he doesn’t like bombing them into obliteration taking over their resources and stationing missile bases there and refusing to leave a sovereign country it has not been invited to enter therebye breaking international law not just once but continually and unceasingly . Who has the biggest number of prisoners in jail ?? the USA – who castigates countries it wants regime change in for human rights violations while gunning down black people on such a scale as to cause riots and civil unrest -the USA , open your eyes look outside at reality.

Guest

Putins sends his undercover agents instead armed with toxic Novichok Duncan.

Guest

HMG refused to allow any samples being given to Putin to check it out I would not rely on the government outpourings , agents ? plenty of British ones in Moscow as well as SAS in Syria helping terrorists Beryl.

Guest

Do you think British agents in Moscow and Syria are also capable of gassing Syrian women and children?

Your allegiance is at times very questionable Duncan, and what action would you take if you were governed by a cruel dictator who is capable of gassing his own citizens. Would that also make you a terrorist if a military uprising was the only solution to establish a fairer and a more democratic constitution?

Guest

The “cruelty” is coming from the USA with the help of Britain in helping to sustain iSIS and protecting them , look at the cruelty to minority groups in the USA – how about invading the USA illegally to “correct ” the situation ? The ordinary Syrian citizens fully support their government – gassing – what gassing ??? ZERO gas cases in Syrian hospitals locals only know iSIS and other terrorists grabbed them -took them to a hospital and covered them with water the boy in the film by the West has appeared with his parents on international TV saying -NO gas and his parents who also said -NO gas . A big cover up of the truth by the West to justify missile attacks on a sovereign country . USA/Britain attacking Middle East nations at the behest of one Middle -East country so that it can expand its territory ILLEGALLY into surrounding countries and run a pipeline through it for its own profit .

Guest
Phil says:
22 April 2018

Wildly off topic but t sounds like you’ve been taken in by the Putin propaganda machine. Let’s wait until OPCW have done their investigation, not question why permission was delayed and hope they aren’t harassed too much by Syria’s secret police.

The pipeline through Syria would’ve earned the country billions in transit fees but Assad turned it down because it would disadvantage Russia. Obvious who’s calling the shots there.

Guest

Speak to Rodger Waters – re- “the White Helmets ” about the staged “Gas/chemical Attack ” local doctor in hospital NO body had chemical or gas injuries . All the locals said – set up and staged nobody has chemical symptoms . Pipeline through Syria ? wanted by Israel tell me Phil can I run an oil pipeline through your private property and if you refuse missile attack you ? What legal right has the UK/ USA/ France to bomb and invade a sovereign country ? Oh ! I forgot its called -EXCEPTIONALISM .

Guest
Phil says:
22 April 2018

[Sorry, your comment has been removed for being off-topic, please remember to align with our community guidelines https://conversation.which.co.uk/commenting-guidelines/. Thanks, mods.]

Guest

This convo is about the NHS. If we want a Convo on the relative merits of Putin and Trump we should perhaps ask Patrick for one. Personally I get a bit tired of Trump/USA and Putin/Russia being introduced into any Convo on the slightest pretext. Sorry 🙂

Guest

I never started it malcolm but I will stop now and hope others do too.

Guest

Correct and to the point! What on earth have we come to when where you live determines whether you are treated like a human being? (or NOT!) we should all be treated universally without exception with humanity, respect and dignity. Obviously at present this is quite patently not the case – you may well ask where the Government is – at the beck and call of big business methinks! and not the democratic majority who clamour for the right to be treated with respect and fairness!

Guest
Brid oDonnell says:
22 April 2018

The people of West Cumbria know only to we’ll about the cuts to their services West Cumbria is mostly rural and lives were put at risk

Guest

I cannot recall a time when the NHS didn’t need more money, and I was born before the NHS. There is no doubt that clinical advances have prolonged the lives of most of the population – which is a tribute to its success – but its resources have not grown proportionately. I think the areas sadly lacking are continuing care and domiciliary care which are people-intensive needs rather than administered through drug prescriptions or physical procedures or other interventions. During the Cold War we spent 4% of our GDP on defence and other military action; now it is barely 2%. How and where have we managed to fritter away the other 2% with so little to show for it? Perhaps much has gone to the NHS and it hasn’t been spent wisely. Inefficiency and managerial inadequacy remain major challenges. Is it all too big? Perhaps the economies of scale are eroded by complexity and friction in the mechanism that consume more energy but reduce the output.

Guest
Alan Crozier says:
22 April 2018

My wife has dementia and incontinence. I have been looking after her at home for about 3 years since the dementia began. I asked for a doctor to visit her in October 2017, in writing, but no visit was ever made – my request was totally ignored. (We also asked for help in gaining access to the bath, but are still waiting after 3½ years!) When she had a fall a few days later she was taken by ambulance (after a 7 hour wait) to hospital, although apparently uninjured. For a month there were discussions over her being discharged which then then cancelled, as she had ‘deteriorated’ – she lost a lot of weight, needed oxygen and other treatment which had not been needed at home. I suggest poor care was the cause. Wishing to get her out of the hospital; arrangements were made for a ‘fast track’ move to a care home. No one would discuss costs, except to say there would be no charge initially as it was funded under continuing health care under end of life rules. Now I am told that full care cannot be continued – as she is “better” which I interpret as recovered from poor treatment in hospital, but not “better” than she was at home. I am disabled and in receipt of DLA and Industrial Injuries Benefit (that is another story of ‘management incompetence) and so looking after her at home is really not possible. I am now having to declare all sorts of financial details, but have not been offered an opportunity to appeal the decision. She gave many years as a NHS worker. Is this fair?

Guest

No it isnt fair Alan – why were you not offered help with disabled equipment for your wife ? Lifting devices -long handles etc , I hope you haven’t signed your home away ? if you continue to live in it the Social Work cant force you to sell it , you will notice with any pension increase a percentage is reduced from your DLA making the pension of less value and you are taxed at a time of life when you need every penny . Its you and I who are paying the IMF/WB not £millionaires or £billionaires who salt their money off shore who have City accountants and lawyers to make sure they pay peanuts in taxes in relation to the amount of money they have . All you hear is ” the money in the NHS is not being spent wisely ” giving the cue to CUT IT -why dont they say- CUT the money given to the IMF and £Trillions given to the USA to buy bombs etc . Donald is getting applauded in the USA ( 51 % approval ) due to his America First policy helping Joe Public USA but here its “Open Britain ” to rip off by all and sundry and its the poor-sick-old who are suffering most NOT the rich.

Guest

Too much has probably gone towards interest on the £1.78 trillion UK National Debt – approximately 87.7% of GDP, now renamed the PSNCR (Public Sector Net Cash Requirement).

Guest

Samuel is 5 years old and has CLN2 Batten disease without treatment in the next few months he will lose his ability to walk and to talk as well as eat then he will go blind and develop dementia BEFORE he is SIX . Cerliponase Alfa will slow it down BUT is not funded by the NHS . A few children were granted help but that has ended – NHS- 2018 just let me hear the hard -cruel voices – WE cant AFFORD it – bombs first children last .

Guest
Steve Bolter says:
22 April 2018

Why trivialise this very serious matter by describing it as a “postcode lottery”?
What has it to do with one’s postcode?
NHS care depends on which GP you choose.
I live in Essex with an Essex postcode and a Suffolk GP. Some people with exactly the same postcode have an Essex GP.
Some people who live in Essex have a Suffolk Postcode and an Essex GP.

Guest

Update – there are now more than 160,000 British citizens supporting Samuel,s petition, some people do care in this country .

Guest
Jay says:
23 April 2018

My mother went into residential care on the advice of her social worker. She had dementia and was becoming a danger to herself. She contributed to her care costs until she died, because she wasn’t considered to be in “medical” need. I made a retrospective claim for a refund of her care costs and her estate was eventually refunded for 50% of the time my mother was in care. It took over four years for the claim to be decided and I had to go to a tribunal which was quite traumatic. I asked for a full breakdown of the charges which I went through with a fine-toothed comb. There were errors but they were quickly resolved. In the end, over £19,000 was paid to my mother’s estate. One of the reasons it took so long was because the claim was transferred to another health authority, but when it was transferred back to Northumberland the claim was resolved within six months.

My main issue was why is dementia not considered to be a condition needing nursing care. But I would advise anyone to persevere and not give up.

Guest

Jay – https://www.alzheimers.org.uk/info/20032/legal_and_financial/96/paying_for_care/11 a good website – SAFE with near zero tracking . HELP line -0300-222-11-22

Guest
Brenda Pardoe says:
24 April 2018

I though the NHS was for all! But now it seems local NHS not country wide Teresa May. We all paid into the health service so should be treated the same. My sympathies to all affected

Guest

How can this be considered to be a NATIONAL Health Service – what is the pint of having local MPs if they allow this sort of unfair treatment across the country. What’s the point of having a pension and other savings if we dare not spend the money just in case one or both of us need long term care.
Our biggest concern is that politicians KNOW all about this and just think that it is Ok to hide behind such silly remarks as “we’re spending more than ever before on the NHS”.

Guest

N Bailey -because the long term object of the exercise is to obtain a US style Medical Service which is –independent hospitals financed by private holding companies and off shore entities in the Finance business . These are linked to Private Insurance companies and with Big Pharmacy USA , in other words total privatisation . Spending “more than ever ” is just government propaganda , ask the doctors /nurses and surgeons who go on marches in London and elsewhere that they consistently give less than the sustainable amount to keep a first class heath service in business . Its Death by slow strangulation so that one day you will wake up and find you need two health insurances to finance medical care and you need to be rich to afford the drugs just like the USA.

Guest
J Baker says:
26 April 2018

I doubt any one of us would object to the NHS receiving additional funding so it does make you wonder why successive governments give them less than is required. The vast majority of us would probably be happy to pay a little extra each month for good health care. Hell steal a little extra from road tax – ’cause that doesn’t get used on the roads does it!

Guest
Janet marshall says:
5 May 2018

The NHS is seeing numbers not the person underneath. It is a blot on our country that provision for any type of care is a lottery.Money is needed, but a more proficient way of managing. There have been too many chiefs and not enough Indians. more pressure leads to mistakes and omissions in care.I was a nurse for forty years and it is sad that change has been so devastating.

Guest

It has just been announced by the Scottish government that an immediate pay increase of 3 % will be paid to medical staff in NHS (Scotland), this will be an interim payment. They are currently in talks on a 3-year deal which will quote not only match but exceed the deal agreed in NHS (England), as you know Scottish taxpayers pay extra into the devolved NHS (Scotland ) see http://www.eveningtimes.co.uk/news/16280539.NHS_staff_to_get_3__pay_rise__Nicola_Sturgeon_reveals/ why is it all we get in England is – it costs too much -money wasted etc 3 days ago I got my second cataract lens replacement surgery and I am posting this sans glasses the operation carried out by the consultant Professor head of two separate hospitals departments in ophthalmology not only that but as the appointment was early morning I was given a choice of quality sandwiches and a real, cup of tea and the same after the op. I must say that the Professor used a different technique from the first operation and he told me everything he was doing as it happened, I shook his hand at the end and kissed a nurse as going from blind to eyesight of a much younger person was amazing. This would NEVER happen in the USA which England is trying to copy, have any of you seen the charges that a PROFESSOR of ophthalmology costs in the USA ?, I have,gut wrenching! Isn’t it time to stop thinking of me-me-me and start thinking of a future American type NHS -England if you don’t give more in taxes . have you seen the ENGLISH waiting lists for this operation -hitting the headlines of people going blind before any action is taken and that was publicised only a short while ago.

Guest

I’m glad your operation went well, Duncan!

You’re very right, medical costs in the USA can be excruciatingly expensive.

Guest

Thanks for that Alex eye still a bit sore but well worth the operation , I see HM the Queen has had the same type of op. Now both eyes are done its a world of a difference .

Guest

I have just been sent a “horror story ” in relation to the Gosport War Memorial Hospital by the granddaughter of the old lady who died through –well have to choose my words here “incorrect care ” .It is so bad it would upset many people She was in Gosport for respite care, for 6 weeks. If we knew what would happen to her there, we never would have left her in that hospital. Our family visited her every day and we thought she was in the best hands. QUOTE-She was in Gosport for respite care, for 6 weeks. If we knew what would happen to her there, we never would have left her in that hospital. Our family visited her every day and we thought she was in the best hands.

After she had been there four weeks, we received a call from my uncle to say the hospital had informed him that gran had 36 hours to live. He was shaken up, as he had only seen her the day before, kissed her good night and told her he would see her tomorrow. Sandra, her daughter in law, had spent the afternoon with her, drying her hair that had just been washed and making sure gran signed her pension book.

After she had been there four weeks, we received a call from my uncle to say the hospital had informed him that gran had 36 hours to live. He was shaken up, as he had only seen her the day before, kissed her good night and told her he would see her tomorrow. Sandra, her daughter in law, had spent the afternoon with her, drying her hair that had just been washed and making sure gran signed her pension book.We didn’t know at that time, but by this point staff had applied a fentanyl patch on her back. My gran had never had as much as a paracetamol before; she was never in pain and did not have cancer. This patch, when it reaches full strength, at 17 to 23 hours, is equivalent of 135g of morphine. The next morning my eight stone grandmother, who was about 4ft 11in, was reported to be aggressive, and we think she was probably frightened for her life as she was now suffering from a massive overdose.She was then held down by nursing staff and injected in the buttocks with 50mg of an antipsychotic drug called chlorpromazine. It’s a very, very painful injection. Around 50 minutes later, they put a syringe driver in her back and loaded that with 40mg of diamorphine, and 40mg of midazolam. Midazolam is what they use on death row. Gran had no chance.

She wasn’t the only one. My grandmother was one of a possible 650 people whose lives were shorted due to being given lethal doses of painkillers without medical justification. But so far there has been no police investigation announced.After 20 years fighting for justice for our loved ones, the Gosport War Memorial Hospital Inquiry Panel have laid out the facts – that there was a disregard for human life and a culture of shortening the lives of a large number of patients by prescribing and administering “dangerous doses” of a hazardous combination of medication not clinically indicated or justified.To this day there has been no response from the Attorney General with regards to criminal proceedings and the commencement of a police investigation. Justice must prevail and those that disregarded the lives of these some 656 vulnerable patients must be made accountable–end of quote. I am left shocked at this that supposed “caring ” people could act in this manner .
It is petitioned to Geoffrey Cox QC MP by Bridget Devinereeves of Brentford who has allowed her name to be made public for the sake of justice . I am staggered by this and fully support her action and her determination that by publicising this she may stop it happening to others. God Bless you Bridget.

Guest

Just watched a programme on capitalism in relation to the social services for the low end of the earnings scale in America . Two Professors one American ,one English were among other things shown a video of a female on chemotherapy , shaven headed look due to the chemicals , holding up a USA government document for all to read saying -sorry your chemotherapy drugs are NOT covered now and will cost $4000 per MONTH to buy , the lady earning much less than that . She looked at the camera and said –this is signing my death warrant , both Professors said that is what HMG is doing its best to introduce here , even the American Knew ! that American big business medical was going full tilt to get this country 100 % PRIVATISED . So to all those rich people and those shareholders and users of off-shore entities I ask – have you no conscience -have you no shame -no guilt ? if not I say thank god I am not a cold-blooded person. For those that dont believe me –yes I have much backed-up and archived info on this including on our latest Minister in this regard .

Guest

Duncan
Are you having difficulties getting your mind around what has happened at Gosport? I am not surprised. Do you really think that your comment does any good what so ever ? Why can we not concentrate on what is to be done to stop this sort of atrocity happening again, it appears no one learnt anything from Mid Staffs Hospital deaths, all brushed under the carpet it is irrelevant if the system is Public or Private ,if it goes wrong it should be sorted and fixed not go into endless debates .

Guest

Why is the truth so unacceptable to those of a political dogma encrusted outlook , the NHS is being fully privatised inch by inch in England , thats what I am against privatisation of the NHS . What I was posting was an actual case in the USA publicized on an international news channel , when it comes to the NHS I nail my colours firmly on the mast along with , doctors/surgeons/ nurses /medical/clinical Professors, if that is perceived as wrong by those with something to gain from outright privatisation, well okay I have a big enough back to take the knives . My wife lived in the USA for years- Santa Monica and elsewhere including Las Vegas and she told me first hand of the costs there where the biggest public debt is Medical , luckily when working in Vegas it was in a Mafia establishment who paid for her medical expenses as she was well thought of by them for keeping her mouth shut. My IOL lens replacements for cataracts (both eyes ) would cost -2017 figures Institute of Ophthalmologists USA – minimum – $7000 , if I got it done by laser you could add $4000 to it . I wont be changing my mind Gerald .

Guest

Those comments by the two professors were not the truth, Duncan, only their opinions. There will be no charges to patients in the UK for the use of the NHS and our doctors, surgeons, nurses, etc. will make certain sure of that I assure you. The only ‘privatisation’ that is going on is the outsourcing of most non-clinical activities and the use of capacity in the private sector to advance some waiting lists – both of which I approve of. For an organisation that is accused of privatising itself, it’s odd that its payroll keeps growing and the number of its hospitals and beds goes up every year.

Guest

I hope to god you are right John .

Guest

The “truth according to Duncan” .
surely you really don’t believe this when all around you the opposite is happening. Why can’t you just stick to constructive and real situations in a balanced way ,the Private Care Homes present no threat to the NHS whatsoever .No one is advocating that the NHS be closed all most critics (including myself) are advocating better management and more cost efficiency with any savings being plowed back into the NHS system.

Guest

“Why cant you stop the sarcastic remarks which show you as not a proper person to work and own in the “care system ” .
I have kept my mouth shut as you posted here but ignorance of mind and obvious propaganda on a commercial scale to shut others up not conforming to your neo-con outpourings is not going to work towards me .
The sooner the care home system is brought back into public ownership the better.
Your constant attacks on the NHS is disgraceful in the light of your governments cut backs and shareholder dividends its time those doctors/surgeons/nurses/ etc who protest at the downfall of the NHS in England due to being run for profit and your obvious attempts to make a case for selling off the NHS to Big Medical USA is comparable to the Speakers comment on the governments refusal to let Members of Parliament vote on a deal she knew would end in her defeat.

Your idea of “constructivism is agreeing with you Gerald I can assure you its never going to happen as long as the public post their heartrending comments on private care home “care ” .
I care for the public not blatant commercialism at the physical suffering and early death of private care homes customers .
To bring this up at Christmas time shows the “care ” you have for others .

RE-read all the complaints in previous convos on this subject .

Guest
DerekP says:
11 December 2018

I think it would be good to see more constructive debate here and less mudslinging.

I agree with John that our British capitalist society has managed to accept the principle of there being universally available medical care and that no-one should be attempting to dismantle that system.

Guest

Hi both. Let’s be careful this difference of opinion doesn’t stray into personal criticism, and let’s also be very careful about the language being used. We want to see debates and don’t want to request that discussions come to a close, but may not have a choice in some instances.

The community guidelines are here, for ref: https://conversation.which.co.uk/commenting-guidelines/

Thanks both.

Guest

I never started this George – again its a case of one person giving it out and me being condemned for having the “audacity ” to defend myself against sarcasm .
Why not tell him to stop the attack’s?
I have every right to put an opposing point of view against a commercially interested posters point of view especially when I am not addressing him but somebody else.
I have no financial gain to defend .

Guest

NHS funding will never be sufficient as long as GPs continue to prescribe drugs to treat and alleviate symptoms instead of dealing with the source of a problem.

Guest

Well you are right Beryl, but listen to this . Last week I collected my glasses although I dont need them for normal use as the Optometrist told me but I wanted them anyway they add a bit of distinction . As I waited at the bus-stop this man approx 45 came over to my side of the street to wait too. He had a steel walking stick as handicapped people have , he looked tense , something I recognise I used to suffer from the same thing . I can sense when people have problems so I started talking to him , he had arthritis of the spine and a damaged disc and various physical ailments but it was his mental problems that shocked me apart from agoraphobia which my wife suffers from he had severe anxiety /tension /depression and he shook in a crowded situation having to get off the bus at the wrong stop because he couldn’t stand the bus being full . But what he said upset me greatly , he had tried 5 times to take his life , I said to him have you been to St******** hospital to see a psychiatrist/psychologist ? he said no ,I said why not and he said he had been waiting over a year to see somebody , this got me angry and I said to him -what GP surgery do you attend –to my horror he said the same one I attend . I could only come to the conclusion that he was being seen by the rugby playing head of the surgery who isn’t “with it ” when it comes to mental problems in patients . I deduced that putting him on two types of high power drugs was their limit , one I know about and the point is he didnt have the personality to be forceful and demand action although he looked like a tough individual but he himself said – quote – you would think that having to revive me so many times they would do something quickly or even ( I thought ) take him in as an inpatient . I just wish he lived near me I could have gone with him the next time he went to the GP as I know them all there. This is why I dont have much time for people who say- stand on your own feet-snap out of it etc not everybody in this world has a strong personality and this modern society just ignores them because they dont produce for the government and get put down by society.

Guest
Susan Van Sanden says:
20 November 2018

Dementia, and all associated disease and chronic disabilities should be treated within the NHS free of charge to those who have paid into the system all their working lives in this country. Dementia does not just affect the brain, it affects the whole body. If I had my way all care homes would be run by the government and not for profit. This would allow fair wages to all properly trained and qualified staff with the same terms of employment as other medical staff. All care homes a should have a designated doctor and matron. People should not have to pay for their end of life care. It is no different to being in hospital.

Guest

Here ! here ! Susan back you all the way.

Guest

Dear Susan,
You are correct , dementia should be treated under the NHS system but unfortunately the people deciding whether or not it should be funded by the NHS are NOT qualified Doctors or Nurses , they are in most cases Occupational Therapist with no medical training whatsoever.All Care Homes do have a designated Doctor and Matron but they are included at the initial assessment process , Doctors could make an objection but are regularly ignored, Matrons of care Home have no say whatsoever. Many years ago nearly all Care Homes where run by the government (Local Authorities) and some still are. Over the years the Public themselves have chosen to place their loved ones with the Private Sector of which I am proud to be part of . We do pay “the going rate” and we do carry out training otherwise we would not be be able to attract the Good ,dedicated staff working for us, which, in the case of Nursing Homes includes numerous Nurses trained by the NHS .We have not been allowed to train our own specialist nurses but we are the largest recruiters of Filipino nurses , the NHS are now copying us in this.